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From the Heart of a Mom Dealing with Postpartum & Lama2

1/31/2026

From the Heart of a Mom Dealing with Postpartum & Lama2
Life gave an angel, Super cute and fair! I was busy celebrating her, Along with family there. She dropped her hands one day, And life brought a shocker, “Muscular Dystrophy,” “SMA,” “Genetics” Echoed in my ear! While playing the dodge game, “Lama2” caught us unaware. “No CURE, No CURE” is what I saw everywhere! “Your baby won’t live a normal life,” Was what the doctors declared. The endless cries weren’t enough, God had another plan, I wasn’t prepared. Some days were sad, some were fair, I gained more weight out of despair! The sudden bump in the road hit hard, Took away the peace, and brought out the dark. “Don’t think you are alone,” I was told. Some were present for me, some were gone. Therapies, Exercise, the only route possible, We jumped on this road as no other seemed available. Searching for fellow patients became a nightmare; Lama2 is so rare, People aren’t even aware. I am not the same mom as I was before, Fear, worry, and tension have taken over. I’m losing my smile, get angry more often, But I guess only I can heal myself, As I have two daughters to care. “You are doing good, mama,” A therapist once told me. It brought a smile to my face, It was what I needed to hear. A mother is always judged and found to be faulty, She smiles from outside but searches for a corner. While lying on the bed & clearing the diaper, My baby smiles at me, “Mother, all is fine when I am here! You are doing just fine,” She tells me when I am near!!!