Useful Resources and Support Groups

LAMA2.com

Provides a world map of LAMA2-CMD patient associations, helping you find organizations locally or globally.

Rare Disease Info Hub

Connects patients, families, and healthcare providers with information and resources related to LAMA2-related muscular dystrophy.

Cure CMD

Focuses on advancing research for treatments and provides resources for patients and families affected by LAMA2-CMD.

Muscular Dystrophy Association (MDA)

Committed to furthering research and therapeutic development for LAMA2-RD, funding over $1.35 million in research grants since 2015.
MDA’s Resource Center provides support, guidance, and information about LAMA2 muscular dystrophy, open clinical trials, and other services.

Facebook

  • Various pages and groups where patients and families with LAMA2-CMD share stories and connect with one another.

International Support Groups:

  • Struggle Against Muscular Dystrophy (UK): helpsam.info
  • ImpulsaT (Spain): impulsat.org
  • LAMA2 France: lama2.fr
  • Stichting Voor Sara (Netherlands): voorsara.nl
  • Olivia Bloomfield Foundation: oliviabloomfieldfoundation.org
  • CMD Turkey: cmdtr.com
  • AFM Telethon
  • Muscular Dystrophy UK
  • Muscular Dystrophy Canada